Hi all, here is a quick run down of the first LDN European Conference - which had
a full house!
Dr Tom Gilhooly made the introductions, then Linda Elsegood of the LDN
Research Trust discussed how LDN had changed her life for the good.
Mr Stephen Dickson a Glasgow pharmacist and supplier of LDN discussed the problems
of late in getting supplies, this is getting 'ironed' out and so all should be well.
This is what I think he said as I could not hear him too well. He discussed how long
LDN in liquid form will last, and he told us that it was purely guidlines from the
industry that made them put a four week 'life' on it, having said that, he said that
the LDN in liquid had no preservatives in it and that opening and closing the bottle
each time could in theory introduce bacteria. So the guidline of 90 days was a good
Dr Burt Berkson spoke of his success with some cancers, more notably pancreatic
and I think lymphoma, he discussed ALA and he said that IV was a much better way
of getting the optimum result. He suggested 15mgs per Kilo bodyweight I/V. If I remember
correctly he said he gave this twice a week. Oral ALA does not have the same benefits
as you would need to take much more and some would be destroyed in the liver before
it got to the brain and vital organs, he stressed I/V ALA is the best way, but however
you take it, you should also be taking Vit's B complex as well to get better results.
ALA is said to modify gene expression. Metakephalins(sp?) in LDN slows tumour growth
and reduces cell proliferation.
I think it was Dr Gluck who said he told cancer patients
to take conventional treatment first and to follow it with LDN and ALA, Dr Gilhooly
disagreed and said we should throw everything possible at cancers.
Joe Wouk gave
his talk which in some cases was highly amusing, he also spoke of the turn around
in his life after taking LDN for MS and of the scandal that gov't is serving the
interests of big pharma instead of those of the patients. Joe's internet connection
is broken and he cannot get on his own group anymore.
Dr Phil Boyle gave an interesting
talk on fertility showing graphs and examples, he was a really good speaker and a
delightful man. He told me of a man having some success with various cancers, a Dr
Kamil Jurkovic who uses carbimazole, I sent links in an earlier mail but it hasn't
come through yet.
The panel did not get too much time to answer questions because
the sessions ran over time, but Dr Gilhooly suggested we should certainly take Vitamin
D, and Dr Lawrence said everyone should do a zinc test.
As I remember stuff I will write more and hopefully Jayne will remember other things,
but the day was a very good one with patients from as far away as South Africa attending,
I was sat between two Japanese Dr's and a Dr from Norway.
I gave all the leaflets out that I had printed out re Marilyn and Cris, and sold
all of Mary's books, and Mary, I could have sold them ten times over!! I gave the
money to Linda Elesgood for the research...........
We were all invited to the pub
after the conference where perhaps our good Doctors and friends had a high old time,
but since I have a litter of pups at home, I had to leave them to their merriment!!:-)))
next Conference in Europe already has a date, two days next time, 23rd and 24th April
2010, the first day for medic's and the second day open house for all.........
get back if I remember more............
PS. we all got a lovely buffet lunch
and fruit, all free, and full bottle size samples of fish oils etc.......
The trip to Scotland was amazing. The conference was exhilarating. The trip back
Folks, I am here to testify that Low Dose Naltrexone is much bigger than we (I) ever
thought. The cheerleading was accomplished by Mr. Wouk.(sic). The karma was magical.
We listened to Pink Floyd.
Dr. Berkson's cancer work is unbelievable. Dr. Phil has a ton of babies. I met Dr.
Lawrence. I didn't agree with everything, but I learned a ton. We must begin to codify
the mechanism of action. The AM and PM dosing issue was raised, The jury is still
out, in my humble opinion.
The folks who most of us knew only as an email address, are really just folks. I
did feel like we were at the beginning of an international effort To use an old hippy
phrase " Power to the People."
There is some international intrigue. The UK has some LDN problems that we don't
have on this side of the pond in the USA. They are getting ripped off by their Naltrexone
suppliers. You have to buy a ton, and pay all sorts of fees. Its expensive. They
are also fighting the chain pharmacies. Seems like 100 years ago a company had the
laws changed to favor them and against the independent pharmacies. Don't know for
sure, but that was the story I got.
This was a really important meeting. Did anything significant, scientifically, come
out. No, but communication was established and accomplished. Stuff happening in Europe
is not dissimilar to what is happening here in the USA.
The people have taken this thing and are running with it. I can remember 10 years
ago there were maybe 5 or 6 of us who saw the power of LDN. Today, the names just
roll off your tongue. There were so many there and so many who weren't there physically
but were there in heart.
I am convinced more than ever we need to have a definitive study done. If it takes
us 5 years, ok, I have been dispensing LDN for over 10 years. I don't know how long
Irmat’s in NY and Larry, Da Compounder in IL hav been doing it but longer than that.
So we could have had the study done twice. Anyway off my horse.
Respectfully submitted, your faithful servant Dr. Skip
Skip Lenz, PharmD.